I thought this sleep study would be better than the last one because AnnaKate was older and this time I was going to be armed with Billy and the DVD player for the prep. It did help tremendously. The hook up takes over an hour so some distractions really made a big difference. AnnaKate was hooked and ready about 9:30. She pulled off a few things within the first 15 minutes but after those reconnects she was able to sleep from about 10:00-4:00. The tech did come in a few times to check wires and other things, but she had a good 6 hour stretch. ( She did...not me!!) At 4:00am the oxygen sensors in her nose were pulled out and needed to be readjusted. Unfortunately, AnnaKate never went back to sleep. I tried hard but knew it would not happen. So at about 5:15am, we were able to get unhooked and head home. They had gotten plenty of information for the study.
The tech was the same one as last time so I had some rapport with her and I decided to pump her for information as we "dehooked" AnnaKate. She said she did still have some oxygen issues while in deep sleep. But last time AnnaKate had to get blood drawn in the middle of the night because her oxygen was so low and that did not happen this time so we have made some progress. We head back to see the doctor and discuss the results at the end of August. Whatever lies ahead, we can handle it!
We are headed for a visit with Holly and the boys this week. I will post some great pictures when I return.
AnnaKate went to the door and was ready! If she only knew what lies ahead.
Watching a little Curious George.
The hook up begins
She was so tired!
Billy and I married in 1998 after dating for 6 years. In 2006 we adopted AnnaKate. We were lucky enough to meet her birth mother and take her home from the hospital. At about 4 months old, AnnaKate was diagnosed with Rubinstein-Taybi Syndrome. Through all of AnnaKate's struggles and delays she surprises and delights us daily! Thanks for marking this spot and coming back often to check in on us.
12 comments:
I am so glad that you guys had a successful night. We were thinking about you. Now that the study is behind you, have a great time at Holly's!!!
Cassie
Precious girl. I'm so glad it's over and now you just move forward.
Sweet thing. Sounds like things went ok - pretty tolerant of the glue and tape, etc.
She is such a cutie! Glad that you have the second sleep study done, but sad that the results may not be what you hoped for. Take care:).
Glad it's over! At least it was a better experience than last time.
Have a great trip.
That's great that it was such a success. I'd hate to go through all that and not have a definitive study. Natalie had so many more leads attached to her head for her studies...AK looks much more comfortable than Natalie did.
So happy to hear that things went well with the sleep study. Amazing what DVD's do hey?
I'm looking forward to seeing your amazing pictures.
Glad it is over and happy to hear she had a nice strech of sleep! Kelly F
free sample pack of viagra buy sublingual viagra online viagra dosages viagra mexico viagra oral jelly 18 takes viagra buy generic viagra pfizer viagra does viagra really work viagra generic viagra without a prescription how does viagra work female use of viagra viagra vs cialis
I love theweekesfamily.blogspot.com! Here I always find a lot of helpful information for myself. Thanks you for your work.
Webmaster of http://loveepicentre.com and http://movieszone.eu
Best regards
Glad it's over! At least it was a better experience than last time.
Post a Comment