AnnaKate had an EEG today to look for seizure activity. We have suspected that she may have had a few seizures and we wanted to have it checked out. The EEG itself was pretty easy, the hard part was that AnnaKate had to be sleep deprived to help with accurate results. She could only sleep for 4-5 hours the night before. To keep her awake and active, I took her to the mall and closed the place down! We then came home and played until 11pm when she had a major meltdown. We got her up at 4am which was a lot tougher than I thought. She was exhausted and just cried. We made it to the 7:30am appointment and AnnaKate did great while they hooked her up.(It is nothing compared to a sleep study…) She went right to sleep as she was supposed to, but in true AnnaKate fashion she woke up about 20 minutes into the study. I had to use all my skills to get her to go back to sleep. She eventually did and they were able to get enough information. We should hear some results in the next few days.
*I think the sleep deprivation got to me too…no pictures of the EEG.
Billy and I married in 1998 after dating for 6 years. In 2006 we adopted AnnaKate. We were lucky enough to meet her birth mother and take her home from the hospital. At about 4 months old, AnnaKate was diagnosed with Rubinstein-Taybi Syndrome. Through all of AnnaKate's struggles and delays she surprises and delights us daily! Thanks for marking this spot and coming back often to check in on us.
3 comments:
Ugh. I love my sleep so even reading this post made me shiver! I don't blame her one bit for having a meltdown!
I drew the straw to get Natalie up early in the morning for her EEG, and I think that was A LOT harder than Tom experienced keeping her up late at night. Hugs to you, and here's to a good nap!
Hoping you get good results from the EEG.
Post a Comment