Waiting at the door to go...
Blissfully unaware of what is to come!
Watching a DVD while she waits...
Watching a DVD while she waits...
Anita was hooking her up.
And this was before they put the mask on!
It was the BEST sleep study and it was the WORST sleep study!
Because I am a half cup full kind of girl, I will tell you the good things about sleep study number 3 first.
BEST
+AnnaKate has gotten used to the whole "hook-up" routine so there is virtually no problem with that part of the study. This is good because that takes well over an hour.
+We requested to have our same sleep study technician, Anita, and that was nice to have a friendly familiar face.
+ We went and had great pizza before the study...I am really stretching it here to have a few more things on the positive side! :)
+They were able to do a "titration" to see what pressure AnnaKate's machine needs to be set to.
+They did not have to switch AnnaKate to a full face mask.
+The best thing fo all...we are finally well on our way to solving AnnaKate's sleep issues!
WORST
-Due to the nature of AnnaKate's sleep issues, the doctor did not want her to sleep with the mask until the study. So Friday she was supposed to sleep with it all night! NOT...she woke up at least every 30 minutes. (Which in turn meant that I did!)
-Everytime AnnaKate woke up she would sign for me to sing her "Wheels on the Bus" to lull her back to sleep. I am sure the sleep study tech got a kick out of that!
-Because AnnaKate woke up so many times and cried so much she clogged her oxygen sensor tube 3 times. Which means, wake her up, untape the tube from her face and retape a new one on.
-They had to draw blood in the middle of the night to check blood gases.
-My bed in the room is horrible! I really could not even sleep in those 30 minute windows that sweet AK gave me.
So we made it home by 6am Saturday and we will wait to hear what to do next from our doctor. I am anxious about starting to use the mask at home for sleep but I know like every thing else...AnnaKate will adjust and so will we!
Billy and I married in 1998 after dating for 6 years. In 2006 we adopted AnnaKate. We were lucky enough to meet her birth mother and take her home from the hospital. At about 4 months old, AnnaKate was diagnosed with Rubinstein-Taybi Syndrome. Through all of AnnaKate's struggles and delays she surprises and delights us daily! Thanks for marking this spot and coming back often to check in on us.
11 comments:
aww sorry you didn't get any sleep. Sounds like a horrible night. I love your new background..
WOW, well it is just one more step in getting her to be an even better sleeper.
I am glad that is over- take a day off to have some "YOU" time! I love you girl!
She is such a trooper. I hope you were able to nap.
Sorry you didn't get any sleep..Logan and I would have come and help you sing Wheels on the Bus..Logie's favorite tune..well besides Monkeys jumping on the Bed! Hope you get what you need out of the sleep study..:) I like your new background too! :)
At least it is over! I hope that the results give you the information that you need. Sleep well!
:( So sorry it was a miserable night for you...I hope they got some good data!
You know, I don't think I'd even attempt to sleep as a parent participating in that study. I'm just too high strung to chillax in an environment like that. I have no idea how our kids do it.
My hat is off to you and Anna Kate.
That sweet little punkin' is such a trooper, and YOU ARE TOO! I'm glad it's over and hope this one gets you further down the path to some quality ZZZ's.
Love you all!
Cat
Seriously????? How can anyone sleep with all those wires and stuff taped everywhere. I mean come on!
You guys are such troopers... I'm sorry there was a major lack of sleep for you and AK but hopefully they will have gathered enough data and hopefully you are done with the studies...
Think about summer... and the friends you like to hear snore... hee hee
Sounds like a rough night for everyone involved. Hope you got a nap the next day!
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