When AnnaKate was first diagnosed with Rubinstein Taybi syndrome my thoughts often obsessed over this question. I know family members think about it a lot and strangers ask it very bluntly.
Will she ever talk??????
AnnaKate will be 6 in April and I have truly stopped worrying about what I can’t control. (Insert my mother’s applause here…) I used to really worry about not hearing my child’s voice, her inability to tell me what hurts or what she loves, and not hearing her say I love you. But as AnnaKate has grown, she has learned to communicate. She signs, gestures, uses communication systems (iPad, books, pictures, etc.) and does speak a few words. AnnaKate has taught us that speech is not the most important thing, communication is. She has a voice, it just may not sound like ours.
We are seeing lots of improvement in the area of communication which is exciting to see. Her SLP had me compile a list of her words and I was shocked at how many she does have.
Frequent good quality words spoken
t t (trot)
Caroline (Kuh Kuh)
yaya (more or juice...to be determined)Letters (ABCDEFGHIKLMOPRSTW)
AnnaKate has a huge signing vocabulary. She picks up signs very quickly (thanks Signing Times…) and sometimes even creates her own.
So, to answer the question…”Will she ever talk?”---Yes, she WILL communicate!